10/27/2009

POLIO EFECTOS SECUNDARIOS DE LA POLIO SINDROME SPP O COMO QUIERA QUE TE LLAMES


Me tomaste por sorpresa hace ya tanto que no quiero recordar, tomaste lo que me quedaba y lo fuiste menguando poco a poco, te enfrente con toda valentía y  te acepte con una actitud positiva, nunca te hice mío, cómo dicen algunos "mí diabetes" porque las enfermedades no deben marcarnos ni menos etiquetarnos y tomar nuestra verdadera entidad.
¿En qué momento decidí mí misión ? En un momento muy doloroso pero muy consiente de mí principio de realidad, mí misión con todo ese amor incondicional que unos y otros se han  mofado.



Por dedicarme enteramente  2 años completos a lograr algo relevante , lo mas importante para todas las personas con secuelas de Polio y las que ya  padecen de Síndrome de Post Polio en México descuide lo que ante los ojos de los demás se ve, se retrata , se mira y demuestra el trabajo realizado, yo elegí  estar entre bambalinas.

Me mintieron, me engañaron de la manera más _____, un sexenio pasado y lo que va de este.. caray eso suma 9 años casi nada y para mi todo un hermoso tiempo,  en fin no quedo en mí, quedara en la conciencia de los que tiene el poder en esté país al que cada día conozco menos y en el que me siento triste ver que rumbo va tomando, me queda la esperanza de que hay un mañana no muy lejano  seamos un Mexico plural, más equitativo , incluyente y con  mayores posibilidades de obtener,  los derechos para las personas con Discapacidad que actualmente  no se ha logrado avanzar realmente.... salud, trabajo para todos, seguridad , una verdadera inclusión social para las personas con Discapacidad y sus Familias, crecimiento bien distribuido ,  crecimiento y desarrollo de tecnología de punta,un país donde su aire  sea limpio  para respirar ,se puede es solo que quieran  tenemos grandes Ingenieros que han demostrado  con grandes proyectos factibles de realizar hacer  algo así como molinos de aire desde el Ajusco ! ah y no carecer del elemental liquido vital, agua.¡

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Que mí nieta no tenga que emigrar a otro país  porqué  ya no habrá un rincón dónde haya un parque un pasto verde y un bosque donde correr  con su papalote al vuelo, subir a un caballo y sentirse una amazona, tocar una liebre, o cualquier animalejo  campestre.

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 lo que si se  lamento es el tiempo invertido en el proyecto que realice, pero finalmente todo aprendizaje sirve,  por ello no me permitía seguir dando conferencias fuera del D.F y en sitios circundantes y ante los ojos de lo demás pareció que no he realizado nada .
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Seguire adelante cómo siempre con mucho entusiasmo siempre adelante escursionando otros caminos
y posibilidades sí una puerta se cerro igual otra me esta esperando abierta de par en par.

"Nuestra recompensa se encuentra en el esfuerzo y no en el resultado. Un esfuerzo total es una victoria completa."


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Con una sola persona que haya logrado que su vida cambiará y mejorara me doy por más que bien servida y de ello no tengo duda porqué gracias a la vida, gozo del cariño, de la amistad de muchos de ellos.


Atentamente 
Liliana Marasco Garrido







The Polio Crusade

THE POLIO CRUSADE IN AMERICAN EXPERIENCE A GOOD VIDEO THE STORY OF THE POLIO CRUSADE pays tribute to a time when Americans banded together to conquer a terrible disease. The medical breakthrough saved countless lives and had a pervasive impact on American philanthropy that ... Continue reading..http://www.pbs.org/wgbh/americanexperience/polio/

Erradicación de La poliomielitis

Polio Tricisilla Adaptada

March Of Dimes Polio History

Dr. Bruno

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movie

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A 41-year-old man developed an acute illness at the age of 9 months during which, following a viral illness with headache, he developed severe weakness and wasting of the limbs of the left side. After several months he began to recover, such that he was able to walk at the age of 2 years and later was able to run, although he was never very good at sports. He had stable function until the age of 18 when he began to notice greater than usual difficulty lifting heavy objects. By the age of 25 he was noticing progressive difficulty walking due to weakness of both legs, and he noticed that the right calf had become larger. The symptoms became more noticeable over the course of the next 10 years and ultimately both upper as well as both lower limbs had become noticeably weaker.

On examination there was wasting of the muscles of upper and lower limbs on the left, and massively hypertrophied gastrocnemius, soleus and tensor fascia late on the right. The calf circumference on the right exceeded that on the left by 10 cm (figure1). The right shoulder girdle, triceps, thenar eminence and small muscles of the hand were wasted and there was winging of both scapulae. The right quadriceps was also wasted. The wasted muscles were also weak but the hypertrophied right ankle plantar flexors had normal power. The tendon reflexes were absent in the lower limbs and present in the upper limbs, although the right triceps was reduced. The remainder of the examination was normal.

Figure 1

The patient's legs, showing massive enlargement of the right calf and wasting on the left

Questions

1
What is that nature of the acute illness in infancy?
2
What is the nature of the subsequent deterioration?
3
What investigations should be performed?
4
What is the differential diagnosis of the cause of the progressive calf hypertrophy?

Answers

QUESTION 1

An acute paralytic illness which follows symptoms of a viral infection with or without signs of meningitis is typical of poliomyelitis. Usually caused by one of the three polio viruses, it may also occur following vaccination and following infections with other enteroviruses.1 Other disorders which would cause a similar syndrome but with upper motor neurone signs would include acute vascular lesions, meningoencephalitis and acute disseminated encephalomyelitis.

QUESTION 2

A progressive functional deterioration many years after paralytic poliomyelitis is well known, although its pathogenesis is not fully understood.2 It is a diagnosis of exclusion; a careful search for alternative causes, for example, orthopaedic deformities such as osteoarthritis or worsening scoliosis, superimposed neurological disorders such as entrapment neuropathies or coincidental muscle disease or neuropathy, and general medical causes such as respiratory complications and endocrinopathies.3

QUESTION 3

Investigations revealed normal blood count and erythrocyte sedimentation rate and normal biochemistry apart from a raised creatine kinase at 330 IU/l (normal range 60–120 IU/l), which is commonly seen in cases of ongoing denervation. Electromyography showed evidence of denervation in the right APB and FDI with polyphasic motor units and complex repetitive discharges, no spontaneous activity in the left calf and large polyphasic units in the right calf consistent with chronic partial denervation. Motor and sensory conduction velocities were normal. A lumbar myelogram was normal. Magnetic resonance imaging (MRI) scan of the calves is shown in figure2.

Figure 2

Axial T1 weighted MRI scan (TR 588 ms, TE 15 ms) of the calves, showing gross muscle atrophy and replacement by adipose tissue on the left, and hypertrophy of the muscles on the right, with only minor adipose tissue deposition

QUESTION 4

The differential diagnosis of the progressive calf hypertrophy is given in the box.

Causes of calf muscle hypertrophy

Chronic partial denervation

  • radiculopathy

  • peripheral neuropathy

  • hereditary motor and sensory neuropathy

  • spinal muscular atrophy

  • following paralytic poliomyelitis

    Neuromyotonia and myokymia

  • Isaac's syndrome

  • generalised myokymia

  • neurotonia

  • continuous muscle fibre activity due to: chronic inflammatory demyelinating polyradiculopathy, Guillain Barre syndrome, myasthenia gravis, thymoma, thyrotoxicosis, thyroiditis

    Muscular dystrophies

    Myositis

    Infiltration

  • tumours

  • amyloidosis

  • cysticercosis

    Link here