Jun 10, 2010

Expert delivers answers for those inflicted with polio

   Rebuilding Lives, Empowering People and Preventing Injuries

An internationally known Post Polio Syndrome expert from the US will give a much-needed insight into the illness during Post Polio Awareness Week (3-9 August).
Dr William DeMayo, Medical Director of the comprehensive Post Polio Clinic at the John P Murtha Neuroscience and Pain Institute in Philadelphia, will share his vast knowledge about Post Polio Syndrome, including its symptoms, side effects and pain management techniques, via a video conference at the Spinal Injuries Association’s Woolloongabba office next Wednesday (5 August).
His talk will centre on the theme, Comprehensive Post Polio Assessment Clinics – do we really need them?
“As Post Polio Syndrome becomes more recognised in both medical circles and in the general community, an increasing amount of people worldwide are being diagnosed with the condition,” Dr DeMayo said.
“I’m looking forward to sharing what I know about the syndrome with a Queensland audience, as I’m aware there are six Post Polio Support Groups operating in regions throughout the state.
“By providing the audience with practical information about the condition, I hope to make a difference in their lives that will assist in easing the disability and pain of Post Polio Syndrome.”
Like most five-year-olds, Varsity Lakes resident Lyn Glover was full of energy, but when she was struck with polio in 1958, she spent a month of solitude while quarantined in hospital recovering from the insidious illness.
Polio did not really feature in Lyn’s life again for many years, until she broke her foot in 2006 and began experiencing the late effects of polio.
To highlight Post Polio Awareness Week (3-9 August), Lyn explains that polio is a viral disease that attacks the spinal cord and causes permanent or temporary paralysis.
“The nerves that were killed or damaged at the time of the initial virus attack when I was young were replaced by the development of compensatory nerves, which resulted in partial recovery,” she said.
“What is now believed to be happening is that those compensatory nerves are dying as the result of over use of muscles and joints and a return for many elderly people with polio to the wheelchairs, calipers and walking canes that many had long discarded.
“Many post polio sufferers are now experiencing considerable pain as the result of this reversal. The condition is called Post Polio Syndrome or known as experiencing the late effects of polio.”
Symptoms are varied but include muscle weakness, extreme fatigue, sleep and breathing difficulties.
The Gold Coast Post Polio Support Group formed in 2007 and Lyn is convenor of the group, which meets monthly to discuss issues ranging from healthcare advice to accessibility issues in the community.
Spinal Injuries Association CEO Mark Henley said it was a real coup for the organization to host the live video conference with Dr DeMayo.
“Because Post Polio Syndrome and the late effects of polio are still relatively unknown, there are many people in the community with misconceptions, or who may not realise they have one of these conditions,” Mr Henley said.
“Dr DeMayo’s insight into Post Polio Syndrome will answer a lot of questions for many people.”
For more information on Post Polio Syndrome or your local Member Networks group, please visit www.spinal.com.au.
Issued 28 July.

Polio gone, but its impact on Albany Creek resident continues.

 Creek’s Dr Margaret Peel will later this month attend an international conference on polio survivors in Warm Springs, Georgia – the place where former US President Franklin D Roosevelt, who famously had polio throughout his presidential term, spent a lot of time rehabilitating and passed away in 1945.

The Post Polio Health 10th International Conference: Living with polio in the 21st century, will draw approximately 400 people from around the world.

Delegates will include those such as Dr Peel who has Post Polio Syndrome (PPS), people experiencing the late effects of polio and medical practitioners from a range of health fields.

Diagnosed with polio as a child when the epidemic struck in 1951, Dr Peel spent many years working as a microbiologist and travelling extensively with manageable side effects from her childhood affliction until 10 years ago, when she was diagnosed with PPS.“The side effects are different for everyone but can include progressive loss of muscle strength, joint and muscle pain, unaccustomed fatigue, cramping and in some instances, trouble swallowing and breathing,” Dr Peel said.

Increased sensitivity to cold temperatures, difficulty sleeping and a decline in the ability to perform basic daily activities are other symptoms of PPS.

Dr Peel said she would be travelling with several other Australians to the conference and hoped to hear about the latest research being carried out and useful advice on relieving PPS symptoms.

As the secretary of the Brisbane Post Polio Support Group, Dr Peel will then share her conference findings with other members of the group.

While PPS is still quite unknown in the general community, well-known people who had polio as children include Kim Beazley, John Laws, Janet Powell and the late Kerry Packer and Joh Bjelke-Petersen.

In 1921, Franklin D Roosevelt was diagnosed with polio at the age of 39 but that did not prevent him from going on to become President of the United States.

He worked tirelessly to fundraise for a polio vaccine and raised more than $25 million for the cause during his time in office.Spinal Injuries Association CEO Mark Henley said the not-for-profit organisation had six Post Polio Support Groups (PPSG) located throughout Queensland.

“Members share their experiences and provide support to each other as they deal with the late effects of polio,” Mr Henley said.“Because the condition is still quite new as the people who had polio in the 1950s begin to age, it can be a daunting time for our members.“Having other people to talk to who are experiencing the same symptoms is reassuring and decreases feelings of isolation and helplessness.

“It’s important to remember that polio may be gone from Australia, but its impact on lives continues.”

Global polio fight to get needed funds -Bill Gates

Global polio fight to get needed funds -Bill Gates

Posted at 06/08/2010 8:16 PM | Updated as of 06/08/2010 8:16 PM

ABUJA, Nigeria - Rich nations and global donors should be able to provide the $2.6 billion in aid needed to combat polio through 2012 despite the global credit crunch, multi-billionaire philanthropist Bill Gates said on Monday.
The World Health Organisation has suggested a budget of $2.6 billion for its polio eradication efforts in 2010-2012, but says it faces a shortfall of about half of funds for that period.
"We are going to the rich world donors at a time when their budgets are tight," Gates, the founder of software giant Microsoft, told reporters during a visit to Nigeria's capital Abuja.
"But between what our foundation will do, what the others will do, I feel quite sure that we will be able to fund that fight," he added.
The Bill & Melinda Gates Foundation, which has been active in fighting child and infectious diseases in poor countries, will commit more than $150 million of its $34 billion fund this year to mass polio immunisation and surveillance programmes.
The number of worldwide cases has declined this year, most significantly in Nigeria which has recorded its lowest level of infections ever with only three so far in 2010. That is down from a total of 288 cases last year.

Key to ending polio
Nigeria, one of four countries where polio is endemic, is considered key to wiping out the virus which spread out from the northern half of the country to 17 African nations in the last few years.
Dr Bruce Aylward, director of the polio eradication initiative of WHO, said there were still many children in Nigeria that are not receiving vaccines and a large outbreak could re-occur if governments and donors become complacent.
"The reality is that it can easily explode again, where you could have thousands of children paralyzed again every single year in this country," Aylward said.
For example, polio was recently found in Tajikistan for the first time in 10 years and quickly spread, paralyzing 152 children in a few months, WHO said.
Nigeria has struggled to contain polio since some northern states imposed a year-long vaccine ban in mid-2003. Some state governors and religious leaders in the predominately Muslim north claimed the vaccines were contaminated by Western powers to spread sterility and HIV/AIDS among Muslims.
Traditional leaders throughout the country pledged in January 2009 to support immunisation campaigns, however, and are pushing parents to have their children vaccinated.
Immunisations of children in Nigeria's north rose to 71 percent this year, up from 63 percent in 2009. WHO has set a goal of 80 percent in Africa's most populous nation.
Polio, which spreads in areas with poor sanitation, attacks the nervous system and can cause irreversible paralysis within hours of infection. Children under the age of 4 are the most vulnerable to the disease that until the 1950s crippled thousands of people every year in rich nations htp://www.abs-cbnnews.com/global-filipino/world/06/08/10/global-polio-fight-get-needed-funds-bill-gates

Jun 4, 2010

México tiene una trayectoria reconocida en la erradicación de enfermedades como poliomielitis,

Mantener coberturas, actualizar el esquema y garantizar el abasto, retos en vacunación .El Secretario de Salud, José Ángel Córdova Villalobos, inauguró simposio para celebrar el Décimo Aniversario BIRMEX México tiene una trayectoria reconocida en la erradicación de enfermedades como poliomielitis, difteria y tétanos neonatal México cuenta con el esquema de vacunaciónpara niños más completo de América Latina, tanto por el número biológicos, como por la población a la que beneficia, de manera que el reto es actualizarlo, sostener las coberturas y garantizar el abasto, afirmó el Secretario de Salud, José Ángel Córdova Villalobos.

Al inaugurar el simposio para celebrar el Décimo Aniversario de los Laboratorios de Biológicos y Reactivos de México (BIRMEX), que se llevó a cabo en el Auditorio Jaime Torres Bodet, del Museo Nacional de Antropología, e
l Titular de Salud, dijo que en materia de vacunación nuestro país ha tenido una trayectoria destacada y reconocida, al erradicar enfermedades como la poliomielitis, desde 1990, así como la difteria, el tétanos neonatal, ytener bajo control, sarampión, parotiditisy rubéola.

Explicó que para continuar los altos niveles de coberturas alcanzados, se propone tener actualizado el esquema básico de vacunación para menores de cinco años, en la población mayor de 60 años y grupos específicos, con base a la evidencia científica y la disponibilidad de recursos.

Asimismo, mantener la cobertura completa del Esquema Básico de Vacunación en menores de un
 año de edad por arriba del 95%. También se debe asegurar que al menos el 95% de los adolescentes 
de 12 años cuenten con una dosis de inmunológico contra tétanos y difteria, y dos dosis contra 
hepatitis B, y que al menos el 95% de la población mayor de 50 años reciba su dosis anual contra la influenza estacional.

Acompañado por el director general de BIRMEX, Samuel Ponce de León Rosales, el Secretario de Salud, enfatizó que se buscará fortalecer las acciones de inmunización en los 100 municipios con más bajo índice de desarrollo humano para prevenir enfermedades como tuberculosis en menores de cinco años y consolidar las acciones dirigidas a mujeres en edad fértil para erradicar la rubéola congénita y el tétanos neonatal.

Por otro lado, comentó, es fundamental garantizar el abasto, conservación adecuada y distribución oportuna de las vacunas y mantener actualizados los diferentes subsistemas de vigilancia 
epidemiológica de las enfermedades prevenibles por antígeno, a la vez de fortalecer los convenios 
de cooperación con organismos multilaterales y laboratorios de prestigio internacional, para contar 
con la vacuna contra la influenza pandémica una vez que esté disponible.

En este sentido, subrayó, en colaboración con BIRMEX y el sector privado,

se construye en nuestro país una planta para el procesamiento y envases de vacuna de influenza estacional con capacidadde 30 millones de dosis anuales y de 45 millones de dosis de vacuna pandémica, la cual se espera inaugurar en el año 2010, como parte de los festejos del Bicentenario de la independencia de México.

Además, indicó con el fin de aprovechar la capacidad de las instalaciones de BIRMEX se plantea, en 
el mediano plazo, que esta planta de producción elaboré de forma secundaria la vacuna contra hepatitis A y B, neumocóccica, papiloma humano y rotavirus.

Córdova Villalobos enfatizó que garantizar la producción nacional de los reactivos, vacunas y otros dispositivos médicos, es un temade seguridad nacional. “Las vacunas son insumos que deben estar disponibles de manera oportuna y suficiente, se trata de un producto de una importancia tal, en términos de salud y seguridad, que es deseable avanzar hacia la autosuficiencia en esta materia”,

Con este fin, agregó se fortalece la capacidad de producción de inmunógenos básicos se genera la infraestructura física, de investigación, de equipamiento y formación de recursos humanos, pues la meta es producir 200 millones de dosis de vacunas en 2010 y 220 millones en 2012.

Con todo ello, finalizó, la Secretaría de Salud impulsa el desarrollo de los mejores procesos y tecnologías médicas para evitar enfermedades, donde BIRMEX ha sido un actor crucial, que continua y trabaja con su misión por garantizar la provisión de vacunas y biológicos a través de su desarrollo, producción, comercialización y distribución, en condiciones óptimas de calidad y precio.Agradezco a la Secretaria de Salud a su S. Secretario José Ángel Córdova Villalobos al Dr. Ponce de León a Birmex por su atenta invitación APPLAC a este su Décimo Aniversario, mañana continuará su 2° día el Simposio en el programa está "La Poliomielitis" les comentaremos al referendo.

Felicidades S. Secretario José Ángel Córdova Villalobos, es un orgullo que México este a la vanguardia de producción nacional de los reactivos, vacunas y otros dispositivos médicos.

CODIGO G "14" El pasado mes de febrero de 2009 y como resultado de la reunión anual del Comité de Revisión y Actualización de la Organización Mundial de la Salud, (OMS) que tuvo lugar en Delhi, durante el mes de octubre de 2008, la Clasificación Internacional de Enfermedades, en su versión 10 (ICD-10) ha adjudicado un lugar específico al Síndrome Post-Polio (SPP) clasificándolo bajo el código "G14" y excluyéndolo del código B91 (Secuelas de poliomielitis), en el que antes ese organismo lo consideraba abarcado. Más informes www.postpoliolitaff.org

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Postpoliolitaff.- Asociación Post Polio Litaff A.C Primera Organización oficial sobre Síndrome de Post Poliomielitis En México.

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