Jul 15, 2016

Simple Guide On How To Properly Deal With Arthritis

People with joint inflammation are often unable to complete the simplest physical activities without pain. There are, however, ways that you can cope with the pain and inflammation arthritis causes. Read this article to learn new secrets on dealing with arthritis.
If you suffer from arthritis, make sure you wear good quality shoes when exercising. You might further hurt yourself if you do not wear good shoes. Additionally, they can hurt your legs and their joints. Buy new workout shoes when you notice the bottoms are wore out unevenly on your old pair.

Try to do some swimming if you have arthritis. Not only are water activities good for limbering up your muscles and joints, the water especially when warm, gives off a soothing effect for arthritis sufferers. If you aren’t used to being in water, you might want to sign up for a swimming class.
Relaxing and eliminating stress can help you to better deal with your arthritis. Whenever you are feeling stressed, your body releases chemicals that often cause inflammation, worsening your arthritis. Consider some exercise and improving time management skills as a means of reducing stress in your life.

Acupuncture can reduce the pain you get from arthritis. It has been proven that arthritis can help alleviate joint pain. If you decide to use this technique, be sure that you keep it up, as doing it one time will not help in the long run.
Try using aromatherapy to ease your arthritis pain. Research has proven that aromatherapy aids in the relaxation of muscles and joints thus decreasing the pain of chronic conditions such as arthritis.

If you haven’t had any success with the arthritis treatments that you’ve tried, speak with your physician about the possibility of having joint surgery. This highly effective surgery can reverse mobility and flexibility problems.
Do not let anything make you feel bad. Although you are obviously unable to perform as well as you used to, this is still nothing to feel guilt or shame over. Feeling sorry for yourself helps no one, so you should try to always stay positive. Giving certain things up isn’t a reason to feel bad.

Get as much sleep as possible. Sleeping will rejuvenate your energy and tolerance to pain. If you do not get enough sleep, the next day will be hard to get through. For the best sleep, try having complete darkness in your room. Covering your alarm clock and silencing your cell phone can relax you for better sleep.

When you are considering an arthritis therapy regime, it is necessary for you to take an aggressive approach. Variations in needs, pain levels, and symptoms are endless due to the millions of patients and hundreds of types of arthritis. Record the time of day, weather, severity, consumption of food and beverages and the exact nature of each symptom. This will help to determine your needs for treatment.
By applying what you have learned, you may find it easier to cope with arthritis. You will find relief if you put these tips into action. Take some time to let the information from this article soak in, and you’ll get benefits from the all that is presented.

Post Polio Litaff, Association A.C _APPLAC Mexico

Stem Cell Clinics Selling Risky Treatments Explode Across the U.S.

Unproven stem cell therapies have been scorned as “medicine’s Wild West.” Patients have died while undergoing treatment. Yet others have called them “miraculous.” Hundreds of NFL players have sought them out.
A study published today in the journal Cell Stem Cell finds that there are 570 clinics operated by 351 companies selling stem-cell procedures directly to consumers in the U.S., raising concerns that unapproved treatments could cost patients thousands of dollars and threaten their health.
“The big question for me is, how did this happen in the United States?” said Leigh Turner, an associate professor at the University of Minnesota’s Center for Bioethics & School of Public Health, who co-authored the study. “It’s often framed as a story about stem cell tourism, that these businesses don’t exist in the United States, they exist elsewhere around the world in Ukraine, Mexico, China, and India. Our findings clearly show that this is a widespread problem here.”
Stem cells are undifferentiated human cells that can be made to grow into different types of tissue. Scientists hope they can one day be used to treat disease or repair injured tissue. But few therapies have been proved in rigorous trials, and unapproved treatments have been linked to harm. The only stem cell treatments approved by the Food and Drug Administration use cells taken from bone marrow, and even those are restricted to specific transplants.
Researchers worry that the legitimate field of stem cell science, which holds great if early promise for medical advances, could be tainted if the public associates it with complications from unapproved treatments.
“We found a subset of businesses that are marketing just an astonishing number of interventions—neurological diseases, spinal cord injuries, immunological diseases, orthopedic injuries and conditions, and cardiac problems,” Turner said. “When I see businesses like that making claims that they can use stem cell interventions for 20, 30, 40 different diseases, that to me raises some pretty obvious questions.”
The companies the study turned up are all over the country.
The companies the study turned up are all over the country.
Source: Leigh Turner and Paul Knoepfler
The FDA has issued draft guidelines for stem cell therapies and is planning a public hearing in September on regulating procedures. The agency is “concerned that the hope patients have for treatments not yet proven to be safe and effective may leave them vulnerable to unscrupulous providers of stem cell treatments that are illegal and potentially harmful,” said Andrea Fischer, a spokeswoman.
Turner and co-author Paul Knoepfler, an associate professor at the UC Davis School of Medicine who runs a stem cell blog called The Niche, identified the businesses using Internet searches, text mining, and analysis of company websites. They turned up several that were marketing treatments for multiple diseases and injuries and weren't being investigated by regulators. They found hot spots: more than 100 companies or clinics in both Florida and California. Beverly Hills and Los Angeles had 30 clinics between them. Texas came in third, with 71 clinics.
Cassandra Hockenson, public affairs manager for the Medical Board of California, said the board doesn't oversee clinics and that the state’s Department of Public Health was tasked with regulating them. The department said it licenses certain facilities that provide stem cells to health care facilities but doesn't regulate clinics. Representatives of the Florida Board of Medicine and the Texas Medical Board, didn't respond to requests for comment.
More than half the clinics the study examined involve fat-based treatments that work like “mini-liposuctions,” Knoepfler said. Clinics extract fat cells, treat the removed fat with an enzyme to liquefy it, spin it to separate cells from fat, then reinject the cells in various locations to treat injuries and diseases. Of the businesses Knoepfler and Turner identified, 61 percent offered fat-based treatments and 48 percent bone-marrow treatments.
“I was shocked," said Larry Goldstein, director of the UC San Diego Stem Cell Program and a member of the International Society for Stem Cell Research, who wasn't involved in the study. "I knew that the number of problem clinics was growing, but I hadn’t realized it had grown to this extent.” Goldstein said he would have predicted there were about 100 clinics in the U.S. In February, STAT News estimated as many as 200.
The clinics operate in a regulatory gray area. A substance derived from a patient’s own cells isn't considered a drug subject to approval by the FDA. It wasn’t until October 2014 that the FDA issued the first of four sets of draft guidelines to clarify which treatments would be considered drugs and subjected to more scrutiny. The agency has since issued a handful of warning letters or other censures to clinics.

Knoepfler said the clinics might have proliferated in places where people are more accepting of alternative medicine that doesn't require FDA approval, including states such as California. Turner said clinic operators may have noticed state medical boards that aren’t as active in regulating physicians. And existing plastic surgery clinics could repackage their offerings to market stem cell procedures, he said.

“Why is it that some companies are getting these warning letters and other ones, doing similar kinds of things, don’t seem to be attracting the attention of regulators—the FDA, the FTC, state medical boards?” Turner said. He cited limited resources at the FDA, the Federal Trade Commission, and state medical boards that license physicians as a possibility.
The FTC can act against companies engaging in deceptive advertising and has fought the misleading marketing of dietary supplements and clinics making claims about other alternative treatments. It hasn't yet acted on stem cell treatments, said Mitch Katz, a senior public affairs specialist at the agency.
Tim Caulfield, research director of the Health Law Institute at the University of Alberta, helped write guidelines that the International Society for Stem Cell Research published last month urging caution in discussing the promise of stem cell medicine. He said the lack of clear rules on what treatments are prohibited allowed clinics to flourish.
“Regulatory uncertainty," Caulfield said, "created a market opportunity."
(Updates to add comment from California Department of Public Health.)

Watch Next: The High Cost of Prescription Medicine 

The High Cost of Prescription Medicine

Post Polio Litaff, Association A.C _APPLAC Mexico

Jul 11, 2016

Jail time now possible if you have a fake service animal

By Bailey Myers and Christie Zizo, Team Coverage
Last Updated: Wednesday, July 01, 2015, 7:38 PM 

A new Florida law means jail time if you pose your pet as a service animal.
Starting July 1, anyone who lies about their animals being a guide or service animal could face up to 60 day in Jail.
For guide dog owners like Richard Darrington, this new law could help discourage imposters.
“I think it will cause people who are on the fence to think before moving forward with the decision,” Darrington explained.
He said that’s important because he is constantly asked whether his dog, Malcolm, is certified and trained.
Darrington is legally blind and needs Malcolm, who was trained for two years to be a guide dog to help him get around.
“I’m questioned all the time, ‘Is this a real guide dog?’” Darrington said. “I know part of that is because there are others out there that are masquerading and that hampers my ability to do what I need to do.”
If the dog is found to be wearing false identifiers, and isn’t properly trained then the owner will go to jail.
The law was sponsored by State Rep. Jimmie Smith, R-Inverness. Smith said he was approached by a disability rights group because veterans with PTSD said they were having trouble with access.
"There was a need for it, and local groups in the state of Florida wanted it," Smith said.
Smith said he worked with local groups as well, but it was tricky because the bill could not step on the toes of the Americans with Disabilities Act.
"So many people wanted us to do certifications and we absolutely told them there was no way to do certifications because the federal government doesn't do certifications," Smith said.
The main purpose of the bill though is to provide clarity -- for owners, for businesses and for the general public.
Service Animals FAQ
What makes an animal a service animal?
The Americans With Disabilities Act defines a service animal as the following:
Service animals are defined as dogs that are individually trained to do work or perform tasks for people with disabilities.
Examples include guide dogs for the blind, dogs who pull wheelchairs, dogs who alert and protect a person who is having a seizure, reminding a person to take medications or calming a person who has Post Traumatic Stress Disorder during an anxiety attack.
A service animal is not a pet. If you see someone with a service animal in store, you shouldn't ask to pet the dog because it is most likely working.
In Florida, a service animal can be a dog or a miniature horse, according to the new law.
What's the difference between a service animal, an emotional support animal or comfort animal and a therapy animal?
Service animals go where their owners go. Because they perform specific tasks directly related to the person's needs, they are always needed anywhere.
An emotional support or comfort animal is not a service dog because while they provide therapeutic benefit to an individual with a mental or psychiatric disability through the pet's companionship. Any animal can be an emotional support animal if a doctor is willing to sign off on it. But the animal is not specifically trained to perform tasks. Because of that an ESA does not get the kind of public access a service animal has. However, if the person has an emotional support animal that is approved by a medical professional, they can live in a housing unit that has a "no pets" rule, according to the federal Fair Housing Act. Airlines are also more willing to let an emotional support animal travel in the cabin of an airplane, under certain limitations. Check with the individual airlines.
A therapy dog, however, is neither. Therapy dogs are used in a wide variety of roles. They are best known for visiting people at facilities like hospitals, nursing homes and schools. They can provide comfort and stress relief for patients. They can also help in nursing homes or rehabilitation centers as a tool in therapy and treatment. But they do not have the public access a service dog has.
Where are service dogs allowed?
Essentially every where. Even at places like restaurants and supermarkets where dogs are not usually allowed, or other places where state or local health codes would prohibit animals. However, there are rules:
They must be properly harnesses, leashed or tethered unless the devices interfere with a service animal's work, or the individual's disability prevents them from using them. Then the individual has to maintain control of the animal through voice, signal or other controls.
Also, the animal must be well trained. A person who uses a service dog has to make sure that dog goes through multiple levels of training, from basic obedience to the Public Access Test. While they do not have to show a license or any evidence to training to a business, if they are dragged into court they will have to show documentation that the dog can pass the Public Access Test.
Is it true businesses are not allowed to question people with service dogs?
Businesses are not allowed to ask for proof of certification or medical documentation regarding a service dog. They are not allowed to ask specifically about the person's disability or if the dog is a service dog. They are, however, allowed to ask TWO questions, per the ADA:
  1. Is the animal required because of a disability?
  2. What work or task has the animal been trained to perform?
The business also cannot charge a person with a service animal extra fees or isolate them from other patrons.
If the animal is out of control and the owner doesn't take action to control it, or the animal poses a direct threat to other patrons, the business can be asked to remove the dog from the premises. The disabled person can then come on the property without the dog.
And allergies and fear of animals are not valid reasons for denying access to a service dog, per the ADA.
Is it true you can just register your dog online as a service dog?
No. There are many websites that claim you can register your dog, by a vest or a patch and your dog is a service dog. Unless that dog is properly trained, that dog is not a service dog. A service dog shouldn't bark unless it is to alert the patient to something they need. They should be house broken. They should follow all handler commands. They shouldn't scratch or bite. They should almost be invisible, only active and visible when they need to be to work for their handler. Even if the dog was trained by the handler, and not by an organization, their training must be absolutely stellar and obvious.
Is there actually a problem with fake service dogs?
Finding statistics on documented fake service dogs are not easy. Faking a service dog is a federal crime, and now also a misdemeanor punishable with up to 60 days of jail time in Florida. Fake service dogs become a problem for people with real service dogs because these people face added discimination from businesses and individuals who have had bad experience. It can affect their access.
Some organizations, like Canine Companions for Independence, are looking for ways to work with The U.S. Justice Dept., and this may lead to a standard for service dogs. They've collected thousands of signatures on a petition to get the Justice Dept. to look into this. CCI said they are increasingly hearing complaints from their clients that they have been denied access to public places because business owners have had bad experiences with fake service dogs.
Is this new Florida law enforceable?
"That remains to be seen," said Martha Johnson, spokesperson for Canine Companions for Independence. "We sure hope so."
Johnson said at least two dozen other states have a similar long, and it has been enforceable in those states.
"I think what it really does is just build awareness and make someone think twice before they pass their dog off as a service dog when they're not," Johnson said.

Post Polio Litaff, Association A.C _APPLAC Mexico

Memorial Dedicated to FDR's Disability Will Feature Personal Tributes to People with Disabilities

Published 2016-07-05 -- Sculpture of President Franklin D. Roosevelt greeting a young girl who is also disabled, will be the first memorial dedicated to FDR disability.
Author: Marc Diamond, Chair, FDR Hope Memorial Committee - Contact: fdrhopememorial.org
Quote: "How people confront their disabilities, with dignity and perseverance, inspires their loved ones, their friends, their caretakers, just as FDR inspires us all."

Main Document

The FDR Hope Memorial, a sculpture of President Franklin D. Roosevelt greeting a young girl who is also disabled, will be the first memorial dedicated to FDR's disability. Designed by artist Meredith Bergmann, the project is planned to open on Roosevelt Island in New York City, with the United Nations within FDR's view.
The memorial is the conception of the Roosevelt Island Disabled Association, which is running a campaign to complete fundraising for the memorial that asks, "Who's your FDR?" Friends and relatives of people with disabilities are raising funds to honor a loved one with a tribute to be engraved on a stone of the granite plaza that leads to the sculpture.
Jim Bates, president of the association, says, "How people confront their disabilities, with dignity and perseverance, inspires their loved ones, their friends, their caretakers, just as FDR inspires us all." FDR lost the use of his legs after becoming infected with the polio virus at age 39.
Tom Brown tribute stone
Tom Brown tribute stone
Tribute stones were first open to residents of Roosevelt Island and are now publicly available at fdrhope.org One of the tributes planned is for Tom Brown, who, like his former wife Nancy Brown, contracted polio, which led to quadriplegia. Nancy and their caretaker Luisa Huerta started the fundraiser for Tom's tribute. Their friends and relatives have now contributed the amount necessary to ensure that there will be a two-foot-wide stone honoring Tom on the Memorial's plaza.
Tom and Nancy were among many patients at Goldwater Hospital on Roosevelt Island who were kept alive with iron-lung machines, full body enclosures that kept them breathing. With advances in medical technology pioneered at the island's hospitals, patients who were dependent on iron lungs became ambulatory. Nancy and Tom were able to move into the new Roosevelt Island residential community when it was built in the 1970s.
Nancy is now the disabled association's vice president and eagerly anticipates the completion of fundraising and construction. "The memorial will be such an inspiring place, not just for people with disabilities, but for all visitors, who will benefit from a greater understanding of the needs for accessibility and inclusion."
Sculpture Rendering
Sculpture Rendering
The sculpture of FDR and the girl are partway through a multi-stage process that will transform them from clay to wax to bronze. Rather than a depiction of an actual event, the encounter is the imaginative creation of the sculptor.
FDR clay sculpture
FDR clay sculpture
"The poses are based on numerous photos of FDR greeting and interacting with child polio patients at Warm Springs, Georgia, and in the White House," sculptor Meredith Bergmann explains. "We see in these meetings exchanges of gentle smiles of recognition, understanding, welcome and hope."
Detailed photo of clay FDR sculpture
Detailed photo of clay FDR sculpture
Photo of clay girl sculpture
Photo of clay girl sculpture

For Meredith, the FDR Hope Memorial continues a theme of addressing social issues with thoughtfulness and wit, as she has done at the 9/11 Memorial at the Cathedral of St. John the Divine in New York City and the Boston Women's Memorial. Her work is informed by her own experience as the parent of a child with autism. "My son's spirit, determination, and abilities astonish me every day. I have tried to infuse the FDR Hope Memorial with those qualities to inspire others in their own struggle to achieve the fullest humanity."
Meredith Bergmann with FDR sculpture
Meredith Bergmann with FDR sculpture

The memorial will be located just north of Franklin D. Roosevelt Four Freedoms Park, which sits at the southern tip of the island. Designed in the 1970s by architect Louis I. Kahn and finally built in 2012, the four-acre park does not acknowledge FDR's disability. It features a larger-than-life-size head of FDR by sculptor Jo Davidson. The park's lack of reference to FDR's loss of the use of his legs spawned a protest by the island's disabled community.
Rendering of sculptures location
Rendering of sculptures location
Dr. Jack Resnick, an internist who has long treated the disabled and seniors on Roosevelt Island, advocated for memorializing FDR's strength in conquering his disability, noting that the island was renamed for FDR in large part because of his connection to polio.
Rather than modifying the design of Four Freedoms Park, a new memorial dedicated to FDR's disability was planned. The Four Freedoms Park Conservatory supported the concept, pledging $100,000 toward its costs. Funding was also provided by Alice Heyman, a New York City benefactor who was moved by the memorial's aspirations, and from the city and state.
Fundraising remains incomplete. Jim advises that people wishing to help build the FDR Hope Memorial and honor someone they know or care for can "do something wonderful and start a granite tribute or contribute to one in progress at fdrhope.org"
Wearing a cap displaying the phrase "enabled not disabled," Jim says he believes the memorial will say to children and adults with disabilities, "Look what you can be."
Nancy emphasizes the message. "We shouldn't be looked at as far as what we can't do; we should be looked at for what we can do."

Post Polio Litaff, Association A.C _APPLAC Mexico

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